I'm in constant pain as it is...my leg muscles don't "switch off", so I have spasticity there. Moving my knees hurts, the muscles ache even sat still. The only time it eases is when I drink a whisky at night, as that actually DOES turn the section of the motor cortex in question off.
At home, if I can hobble from one room to the other, it's a good day. If I can stand for 40 seconds without a leg giving way, it's a good day. Even going for a pee, the involuntary shudder can make a leg go, with annoying results..
Stairs make my knees sound like a crunching bag of crisps..the kids can hear it. They're quite used to my "bugger it. Kids!!! Assistance please!" when I randomly hit the deck.
Nothing can be done. Joint replacement isn't viable due to the CP and gait - they'd need replacement every 5 years. The current approach is "put up with it as long as you can, then we can either fuse the leg rigid, or cut it off."
At home, if I can hobble from one room to the other, it's a good day. If I can stand for 40 seconds without a leg giving way, it's a good day. Even going for a pee, the involuntary shudder can make a leg go, with annoying results..
Stairs make my knees sound like a crunching bag of crisps..the kids can hear it. They're quite used to my "bugger it. Kids!!! Assistance please!" when I randomly hit the deck.
Nothing can be done. Joint replacement isn't viable due to the CP and gait - they'd need replacement every 5 years. The current approach is "put up with it as long as you can, then we can either fuse the leg rigid, or cut it off."